Sunday, July 3, 2011

Fun in the sun

Posting this sweet pic of Kyla girl for all our friends who see and deal with CMS on a regular basis. You probably know this look. She was having such a great time but so weak. Kyla's right eye gets extremely exotropic, turning out, when she is tired. That eye lid also droops and she has a hard time holding her eyes open in the sun. Seems that as she gets older she is able to pace herself in a way that she can regulate the weakness a little better. She would sit or swing when she got too tired to slide, run, or climb. Again, I think the heat plays a major role in the fatigue with our kiddos. Seems to tax their little systems more so than others.




Here is a pic of little sis, Laura! She also had a great time with friends this 4th of July weekend!
















Wednesday, June 8, 2011

kyla turns 9

Haven't blogged in so long... received a very emotional email from a mom of another precious kiddo with possible cms. Reminds me of what a precious gift we have.

Here are a few pics from Kyla's 9th birthday. I am so thankful for hope....

Monday, January 3, 2011

A few moments this holiday season...

Happy Anniversary to us... 12 years !!


Girls Christmas Morning! We were so blessed to have nan, grandad, memaw, pa, and aunt clarissa at our house!!!
Kyla and dad wrote a Christmas play for Christmas Eve night!

Just sweet picture! Couldn't resist!

Happy Birthday Jesus cake!