Weekends

Had a couple of really good weekends here lately. My mom and I joined up the first weekend in November and went to see my sister at San Angelo State. It was fun. We shopped and giggled and shopped some more. Didn't really buy much, but had a great time! it was the first time I had visited Clarissa at ASU. We also went to church together that Sunday morning. FUN!!!

This weekend the Wood Family came to Plainview from Wichita Falls! It was great to see them! The girls had a blast playing and Neely and I enjoyed catching up with Steve and Michelle and watching the girls go CRAZY!!! We ran a 5K Saturday morning here at the Plainview YMCA. Michelle ran with us. Then it was off to Lubbock for some Chick-Fil-a and science spectrum/omni theatre. The girls loved it! Then this morning we all went to church together and Neely cooked a great meal for lunch. GREAT TIMES!

Curlers for Sunday Morning Before and After

Recovering

We are finally getting better! It all started last friday, Oct. 9. Neely was the first one to be sick, dr. gave him antibiotic and steroid shot and called it sinus infection. Then on Sat. Kyla started running fever. Soon to follow were Laura and I!! Yuck! We all took antibiotic, but I believe it was something viral. We have not all been that sick and at the same time in a LONG TIME!

My mom came on Monday night to help with the girls so Neely and I didn't have to miss any more work. Mom is now back home with the flu!!!! Kyla was swabbed for the flu during all this and her tests were negative not once but twice. Who knows what it was but it was BAD. Praying mom is well soon.

Here is a picture of Kyla on Saturday night. The first full day of fever, she looks pretty pitiful. This pic will probably get me in trouble one day (with her), but I think all the families affected by CMS can relate to this look. It is truly the look of Congenital Myasthenic Syndrome.

Then on down you will see some shots of the girls much improved today, Sat. Oct 17.

SICk Saturday and some pumpkin fun!

More GRAND pics..continued

Grandparents all together!

Here are some fun pics of mom, dad, Nan and Grandad with the girls tonight in Lubbock! We had so much fun!

ARD Time

Well it is that time of year.... Admission Review Dismissal Meeting for Kyla. Since we transfered from another district we have to have a full annual ARD now after PISD has received records from WFISD. It is always a time to look at how far we have come and I always get a little teary remembering when... well you all know. She has come so far and we want her to continue to feel successful at school. The issues Kyla struggles with that are directly related to the CMS are general fatigue while at school, increasing as the day goes on, handwriting!!!, motor memory/processing, slow reaction time, timed testing, and some bladder incontinence. She adapts and compensates beautifully. We think learning to type and use a word processor is going to be essential from here on out.

Here's a couple of pics of the girls tonight. I revisited the Kyla video (located here on the blog) last night and the contrast is a stark comparison to these pics I am posting tonight... thank you Lord, Savior, Healer, Miracle Bestower, Hope Giver, All that she (and we) need!