Kyla's Mestinon dose has gone from 5 mL to 3 mL 3-4 times a day on this trip. I pray that in the next week her body will adjust and we'll have our little Kyla back to where she was before we came. We would love to hear from other parents who have children with a CMS. My email address is neely4606@hotmail.com.
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The picture to the right is from yesterday. The Internet connection here at this hotel was really slow last night, so I gave up on uploading it yesterday.
1 comment:
Get home safe guys...More and more prayers keep going up for you guys...
Also, if you land at DFW at 5 and it is a two hour drive to WF, that means you will be in town in time for our 9PM softball game. I expect you there with your game face on!
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