We are preparing to go back to the Mayo Clinic. Sabrina’s parents and sister are traveling with us as we are all flying to Minneapolis on Saturday. We’ll drive down to Rochester on Sunday and will start our appointments at Mayo a week from tomorrow. Kyla is scheduled to have an EMG on Monday, June 23 at 6:45 am and will meet with Dr. Andrew Engel later that day at 1:15 pm. On Tuesday, she has an Electrocardiogram at 8:20, a chest X-ray at 9, blood tests at 9:30, and she will also get to pee in a cup for a urine specimen. On Wed., she has an EEG at 9:30 and an appointment with Dr. Duygu Selcen at 1. We fly home on Thursday.
My prayer for this trip is that Kyla's tests will all be fine and that she will get to start a new medication called 3,4 DAP. This medication has been known to cause seizures, so a clear EEG is a must. Also, I pray that if she gets to take the medication, that it will not cause seizures. On the one hand, Kyla's quality of life is great now, so we're hesitant to mess with what she has going on now. The other side of it is that if there is anything we can do as parents to improve her strength and improve her quality of life, we want to do that. So, we're praying for wisdom and guidance and discernment as we go.
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