After another uneventful day of travel, we arrived home last night at 9:30. Thank you to all who have prayed for this trip and for Kyla. We are blessed to have had no travel problems.
Kyla is now on day 3 of Albuterol. She is taking a pill form of Albuterol. On Wednesday, she took 1 mg (half a pill) at 8 am and another 1 mg at noon. Yesterday, she took 2 mg (one pill) at 8 am and 1 mg at noon. Today, she has already taken 2 mg at 8 am and will take another 1 mg at noon. We will work her up in the next couple of weeks, with a target goal of 2 mg at 8 am, 2 mg at noon, and 2 mg at 6 pm each day. So far, the only side effect we have seen is a case of the jitters. She is a little shaky this morning after taking the pill. However, it's hard to say that we've seen any change in her muscle strength at all. Our starting of the Albuterol was at the same time that we decreased Mestion from 5mL to 3 mL 3-4 times a day, so any advantages of the Albuterol have been more than negated by the significant weakness caused by the decrease in Mestinon. We'll continue to journal the effects of the medicine changes on Kyla and hope others find this helpful. If you are a CMS patient and take Albuterol, we'd love to hear from you (neely4606@hotmail.com). We had heard of Ephedrine as a treatment for CMS, but the use of Albuterol was a new one for us.
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