Carter Family and Congenital Myasthenic Syndrome: September 2009

Monday, September 28, 2009

Grandparents all together!

Here are some fun pics of mom, dad, Nan and Grandad with the girls tonight in Lubbock! We had so much fun!

Sunday, September 20, 2009

Well it is that time of year.... Admission Review Dismissal Meeting for Kyla. Since we transfered from another district we have to have a full annual ARD now after PISD has received records from WFISD. It is always a time to look at how far we have come and I always get a little teary remembering when... well you all know. She has come so far and we want her to continue to feel successful at school. The issues Kyla struggles with that are directly related to the CMS are general fatigue while at school, increasing as the day goes on, handwriting!!!, motor memory/processing, slow reaction time, timed testing, and some bladder incontinence. She adapts and compensates beautifully. We think learning to type and use a word processor is going to be essential from here on out.

Here's a couple of pics of the girls tonight. I revisited the Kyla video (located here on the blog) last night and the contrast is a stark comparison to these pics I am posting tonight... thank you Lord, Savior, Healer, Miracle Bestower, Hope Giver, All that she (and we) need!

Thursday, September 17, 2009

September Evening

Kyla has started school and is doing well. She always seems weak at the end of the days and her eyes always need to adjust at the beginning of school. Her eyes are very fatigued by the end of the day. All in all it has been a pretty smooth start. A few bumps in the road as far as math and timed tests ago going. We have our first ARD of the year on Sept 21.

Here are a few pics of Kyla. She put on a show in her room for Laura and I tonight. It was based on an audio story of Paws and Tails. She drew background pics and used laura's blocks and her Littlest Pet Shop toys. It was a grand production.