Hi there! The Carter family is doing well! We have had fun the last week and a half with lots of family and friends.. Nana, Grandad, Memaw, Pa, extended family and so many fun friends! Neely celebrates his 36th birthday tomorrow and Christmas is right around the corner.
Kyla is doing well. School is tough this year but she again has a fabulous teacher that works with her and accommodates for her weakness and inattention. Laura is having a blast at the pre-k program at PCA. She enjoys school and making friends.
Neely and I find it hard to believe a semester of the school year is already gone!!!!
For all of our CMS followers and parents of CMS kiddos, I just want to say that I have struggled again with Kyla's disease and the affects it has on her life. Just when I think I have accepted what comes with this part of her life, I find myself getting bogged down again in the "what if's, why's and when will's...." She is such a trooper! Currently she struggles with remembering if she has or has not had medicine, pain in her ankles and legs, general weakness, and attention in school. We go to the neurologist this month for the annual visit and this year we have a few new concerns for him. Medicine dosage, physical therapy issues, etc.
Overall, we have such blessings to be thankful for. She has come so far and is able to voice her hurts and issues more clearly to us now.
Here is a little video from her church choir presentation tonight... Hope you enjoy...
Sabrina
The fever started Friday night and then the sore throat, head and body aches, and weakness. I know someday she will really dislike me for posting pics like this of her, but it is just a reminder of what fever can do to an already weak body. That said, she is doing alright as long as we are proactive on keeping the fever away. She has a very hard time sitting long periods or controlling her neck. She also finds it hard to hoist herself in or out of the car (to the dr. office). She told me today it was getting hard to swallow. Just yucky symptoms made worse by the CMS.
