Carter Family and Congenital Myasthenic Syndrome: Much Better

Thursday, January 15, 2009

Much Better

The girls are much better! Neely now has a sore throat and I have a bit of a cold. I think that is usually how it goes in families, right? Thanks for praying for us all. The girls and I are ready for a 3 day weekend to recoup. Daddy has Friday off but works on Sat. and Sunday.

Love,

Sabrina

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Kyla's Current Status

Date Reported: 9/4/2014
Age: 12 yrs.
Weight:
Mestinon: 60 mg 4-5 times daily
Melatonin: 3 mg 1 X nightly
Albuterol: None
General Health: General weakness, especially in the eyes.
Large muscle fatigue when activity is prolonged or in high heat.
Ky is easily fatigued during the school day. She has some accomodations in class when needed. (shortened assignments, more time to complete, etc.) Ky also does not participate in games in PE that require quick reflexes or reactions. Ky has aches and pains in her joints, specifically ankles and knees after a full day at school or a lot of walking.

Carter Family and Congenital Myasthenic Syndrome

Thursday, January 15, 2009

Much Better

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