This link takes you directly to photobucket so I got to see all of the pix! What a great trip. Thanks for sharing. (Boy, does this beat having to put them all in photo albums and lug them around!)
Wow..they up'ed the med. Did you notice anything positive about lowering the meds? Meaning...her bladder issues? Did they get better? Or not? I'm curious if the lower dose had any positive to the concerning side affects? Great to hear she can go back up. Dr. Selcen is sooo good about calling back. I love her for this. Hugs, A Glad to hear San AN. was fun.
Date Reported: 9/4/2014 Age: 12 yrs. Weight: Mestinon: 60 mg 4-5 times daily Melatonin: 3 mg 1 X nightly Albuterol: None General Health: General weakness, especially in the eyes. Large muscle fatigue when activity is prolonged or in high heat. Ky is easily fatigued during the school day. She has some accomodations in class when needed. (shortened assignments, more time to complete, etc.) Ky also does not participate in games in PE that require quick reflexes or reactions. Ky has aches and pains in her joints, specifically ankles and knees after a full day at school or a lot of walking.
2 comments:
This link takes you directly to photobucket so I got to see all of the pix! What a great trip. Thanks for sharing. (Boy, does this beat having to put them all in photo albums and lug them around!)
Wow..they up'ed the med. Did you notice anything positive about lowering the meds? Meaning...her bladder issues? Did they get better? Or not? I'm curious if the lower dose had any positive to the concerning side affects?
Great to hear she can go back up. Dr. Selcen is sooo good about calling back. I love her for this.
Hugs,
A
Glad to hear San AN. was fun.
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