San Antonio Vacation

I took off Thursday through Saturday and we took a little vacation down to San Antonio. We went to the Alamo and Riverwalk on Thursday and went to Sea World on Friday and Saturday. We all had a really good time. We met our friends Steve and Michelle Wood with their two girls Riley and Reese in San Antonio on Thursday and had a great time with them. All of the girls really enjoyed Sea World and getting to see all the shows together.

While on the drive down to San Antonio, Sabrina called Dr. Engel's office at Mayo. She told Dr. Engel's assistant that Kyla has been significantly weaker since we lowered her dose of Mestinon while at the Mayo Clinic. Dr. Engel returned the phone call and told Sabrina to raise the dosage back to what it was before Mayo. Sabrina then told him that he and Dr. Selcen had lowered the dose because of fear of overmedication. He said that it is logical to conclude that since her body responded positively to the higher dose, it is dose that she needs. So, we have raised her back to 5 mL 3-4 times a day. It's kind of hard to tell how she's doing because we've been pushing her much harder than usual since the increase. She was out in the heat a good bit of Thursday at the Alamo and Riverwalk. The sun always zaps her strength. Friday, we were at Sea World from 10 am until 7 pm, and on Saturday from 9:30 am until 2 pm. Needless to say, Kyla was weak all weekend, especially in her eyes. She had a great attitude despite those eye issues. In fact, she had a blast and did really, really well. We took a stroller for Laura and Kyla rode in it a little on Friday evening and then a little bit on Saturday, but she walked most of the day both days and didn't whine much about it. I would guess that the higher Mestinon dose was helpful, but I don't really know for sure. Today, she is recovering very well.

Check out some pictures from our trip. We had a blast!!
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