We celebrated Kyla's birthday on Saturday. She will be 6 on Thursday. She had a few friends over, and they did lots of girly things. They danced and made bracelets while wearing their favorite tu-tus.
Date Reported: 9/4/2014 Age: 12 yrs. Weight: Mestinon: 60 mg 4-5 times daily Melatonin: 3 mg 1 X nightly Albuterol: None General Health: General weakness, especially in the eyes. Large muscle fatigue when activity is prolonged or in high heat. Ky is easily fatigued during the school day. She has some accomodations in class when needed. (shortened assignments, more time to complete, etc.) Ky also does not participate in games in PE that require quick reflexes or reactions. Ky has aches and pains in her joints, specifically ankles and knees after a full day at school or a lot of walking.
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