Enjoyed it. Great Job.Cried a little, laughed a lot and remembered a lot.
Beautiful girl, beautiful family.
hi my name is tracey.i live in the uk.my daughter is 4.she has cms chat mutation.she has a trachi for her breathing problems.Reading your blog is very similar.Ellie my fourth child was much smaller birth weight than her siblings.poor suckle and lost alot of weight she slept alot.apart from that she seamed fine.At 5 months of age she was in her car seat she went blue and floppy.The start of our nightmere.she continued to have massive respitary problems we nearly lost her on 4 occasions.her respitary arrests turn into carrdiac arrests.We are so lucky to still have her.Ellie is such a fighter she is like a ray of sunshine.The diagnosis came with her droppy eye lids and wondering eye.she was put on pyridostigmine.this was a god send she was 2 and couldnt walk.She had been so ill in hospital it wasnt supprising,but she started to sit then walk.She still has her trachi,she can still have respitary problems when not well,she has a home ventilator .we have had some hospital addmistions with cheast infections but nothing as bad as in the past.Ellie can only do things in moderation.she carnt walk very far ,she is are little star.
Post a Comment
3 comments:
Enjoyed it. Great Job.Cried a little, laughed a lot and remembered a lot.
Beautiful girl, beautiful family.
hi my name is tracey.i live in the uk.my daughter is 4.she has cms chat mutation.she has a trachi for her breathing problems.
Reading your blog is very similar.Ellie my fourth child was much smaller birth weight than her siblings.poor suckle and lost alot of weight she slept alot.
apart from that she seamed fine.At 5 months of age she was in her car seat she went blue and floppy.The start of our nightmere.she continued to have massive respitary problems we nearly lost her on 4 occasions.her respitary arrests turn into carrdiac arrests.We are so lucky to still have her.Ellie is such a fighter she is like a ray of sunshine.
The diagnosis came with her droppy eye lids and wondering eye.she was put on pyridostigmine.this was a god send she was 2 and couldnt walk.She had been so ill in hospital it wasnt supprising,but she started to sit then walk.
She still has her trachi,she can still have respitary problems when not well,she has a home ventilator .we have had some hospital addmistions with cheast infections but nothing as bad as in the past.Ellie can only do things in moderation.she carnt walk very far ,she is are little star.
Post a Comment