Saturday, May 24, 2008
Kyla's Video Story
Above is a montage of pictures from Kyla's first 6 years of life. There are a lot of details left out, which you can read by clicking here. You will also notice a lack of pictures of Kyla in the hospital. She had several hospital stays. But we just hoped to get through those events and not chronicle them. Perhaps we should have took some pictures, but we really didn't feel like we could at the time. Although the pictures are absent here, they are still fresh in the minds of Sabrina and I. We also cannot overstate the importance of our Lord, our family, our church family, and our friends between Kyla's 1st and 3rd birthdays. God carried us through some tough times, and He used many of you as His hands and feet. Praise be to the Lord of ALL CREATION, and thank you to all who loved us with His love.
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3 comments:
Enjoyed it. Great Job.Cried a little, laughed a lot and remembered a lot.
Beautiful girl, beautiful family.
hi my name is tracey.i live in the uk.my daughter is 4.she has cms chat mutation.she has a trachi for her breathing problems.
Reading your blog is very similar.Ellie my fourth child was much smaller birth weight than her siblings.poor suckle and lost alot of weight she slept alot.
apart from that she seamed fine.At 5 months of age she was in her car seat she went blue and floppy.The start of our nightmere.she continued to have massive respitary problems we nearly lost her on 4 occasions.her respitary arrests turn into carrdiac arrests.We are so lucky to still have her.Ellie is such a fighter she is like a ray of sunshine.
The diagnosis came with her droppy eye lids and wondering eye.she was put on pyridostigmine.this was a god send she was 2 and couldnt walk.She had been so ill in hospital it wasnt supprising,but she started to sit then walk.
She still has her trachi,she can still have respitary problems when not well,she has a home ventilator .we have had some hospital addmistions with cheast infections but nothing as bad as in the past.Ellie can only do things in moderation.she carnt walk very far ,she is are little star.
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